Good few days

Quinn's Grandparents flew in to see her the past few days. I must say, i was a little worried as it is very hard to take Quinn out a lot with her connected to the feeding tube and oxygen. Well, she has had a pretty decent few days!!! I mean, i'm actually impressed. She has even been digesting food fairly well with minimal bloat. So today, I decided to have her unhooked completely! off everything all day today and just give her some real food. She did exceptionally well. I let the gparents take her to a few places and a movie by themselves. If she was hooked up to everything, neither I or they would have felt comfortable. She had a good day. She ate real food and spent time off her oxygen. Tonight, she just has a stomach ache and a big belly from dinner, but nothing too serious. It was a good day to take her off her supplements. Though she is very stable with them, she is not UNSTABLE without them, if you know what I mean. In other words, she does do better on them in the long run, her problems are chronic, not acute therefore, the chances of her being able to come off the feeding tube and o2 indefinitely are slim to none at this point. But a day without will not harm her, i do not think. Especially in special circumstances, such as today. It's nice to let her be normal for a little bit.

She also had her swallow study yesterday. She did great! The lady said that she did penetrate on thin liquids, but that she did not see any aspiration. which is GREAT! She said she will have to look over it more thoroughly and in slow motion, but she thinks Quinn's swallow is safe. one thing that is noted is that she seems to swallow a lot of air. This could be in part due to her paraesophogeal hernia. She said that she will give the results to the doc and he will decide what needs to be done about it, if anything.

So, all is well in our neck of the woods. I love how spring is here and summer is coming. I like to spend all my days outdoors in the late spring and into late summer/early fall. So we will be keeping ourselves busy of course. I hope summer treats Quinn nicely.