Premature Gray Hairs

Well, today was eventful to say the very least....

Q woke up, we ate some breakfast and did a lot of lounging around the house, decided to start to get ready to go and look at some houses (we are looking for a new home). So i start packing up her oxygen and feeding tube and getting her looking all pretty and she starts acting really loopy and ping ponging off the walls again. This isn't abnormal for her to be all loopy and drunk-looking, but typically it's followed by a day of some kind of activity. This loopiness was pretty extreme, especially for having done nothing the entire morning. So I decided to whip out the video phone and record this. Well, her loopy self got worse even during the video and she wasn't really talking very well, so it really started to worry me.

http://s165.photobucket.com/albums/u65/myQTpie/?action=view&current=blackberry020-1.mp4

I just kinda knew after that something was wrong. And then, she just passed out! like this!

So, i put her on the couch and decided to just take her to our local ER. With her not pooping for an entire week almost, despite giving her all these laxatives, i thought maybe she was repeating what happened to her back in June and thought maybe her body was just not letting her absorb any nutrients... so my thought is she was maybe hypoglycemic or something that might be causing this.

The local ER drew some blood and did some xrays. Doc comes back and says, well, we are going to transfer her to the childrens hospital because of her xray. She was impacted with stool and had some dilated loops <--- not sure what that means though... But her bloodwork was pretty good. She had very stable vitals and everything. so i'm like... ok they will figure it out and hopefully fix her.

So, I meet Q at the children's hospital because she had to ride in the ambulance and the docs give her an enima and she finally poops! Doc says that it's probably a pseudo-like episode and that her xray looks much worse than how she is acting. but, I had her look at the video and was telling her that this was the whole reason i brought her in the first place. Doc says that the video was definitely an example of a "partial complex seizure".... omg! seizures... again... So she consulted with neuro and neuro increased her keppra and we are suppose to make an appointment to see the neurologist this week sometime for long-term care. Quinn is already on Trileptal  and Keppra for seizures. These were increased a lot based on her weight when she was having seizures in January and had to be admitted to the hospital. And she has not gained any weight since then.

I'm a little frustrated with myself because i'm pretty certain that she is probably having a lot more seizures than what i'm aware of. Not to this extreme i don't think, but she does get exhausted a lot and jsut kinda f alls asleep, i jsut thought she was always tired, due to the nature of her likely disease. These are probably more along the lines of seizure activity than anything else. I wish i knew why all this stuff happens to her.

Luckily, we actually escaped admission! Which is utterly amazing to me! But i'm pretty certain that it's because her bloodwork looked really well, her pee has been clear and healthy looking and the enima did the job in making her poop finally. Quinn's motility is really crappy.

So, i'm driving down the road and just thinking about all this stuff happening to her and what happened today and i thought to myself, "I just wish I could wave a magic wand and her head and stomach would be fixed!" and just as i'm thinking this to myself, a shooting star streaks across the sky... So, i wished again :)