Montage and J tube

 I updated quinn's Montage. take a look! *Tissues required*

Quinn Video

On the update side of things...

Quinn's J tube is still giving her problems. I called to try and make appointments, but we can't get in to see the surgeon for a consult until March 3rd. I just don't think this can wait that long. The tube is so painful for her, but also, the crap under the tube is growing, granulation tissue is just growing underneath the green making the tube very tight to her stomach. I'm sure there's something wrong with the inside too because just touching it is incredibly painful for her. We have her belly all taped up to keep it as secure as possible. that does help a little. It started bleeding a little as well. We just need to get this taken care of. It's nasty.

She had another episode of increased heart rate too. We were just sleeping together on my mom's bed when from out of no where, Q wakes me up and says, "mommy, i think my heart is beating really fast"... I put my hand on her chest and sure enough, it was pounding very fast and very hard. I am almost positive these are SVTs. But her cardio says that Q doesn't need to be seen again and that there's nothing wrong with her heart. I've been seriously debating on getting a second opinion. These episodes can be incredibly painful for her... Not to mention quite scary... for her and for me.

Anyway, that's the up and up. i hope everyone has a nice holiday weekend.

Please also, keep Maggie and Eithene in your Prayers! these are mito warriors. Maggie's family was just told taht she might not have long enough to live. She needs a miracle. Eithene has been in the hospital for about a whole year straight. She is having a hard time with continuous infections.