She's in PICU

I gotta sleep so I decided to force myself out the hospital for at least a few good hours of sleep. Joe is with Quinn so that comforts me... a little.

I have only one good thing to report... Quinn is at least breathing on her own... not without difficulty, but she is at least doing it. That's it. So... what happened?

When I left last night, Quinn was still spasming. When I arrived this morning, Quinn was still spasming. The retard resident wouldn't make a decision about whether or not to start atavan. Im telling him to just do something about the spasms, so some five hours later, we started the atavan, which stopped the spasming. And they then put her on a continuous morphine drip for the extreme pain she was in. Her retard nurse thought we should get her up and moving.. at least sitting up because she had been laying in the same spot since Friday. I thought it wasn't a bad idea, as long as she wasn't in severe pain from it like she had been. The morphine did its job and she was feeling better, she had an EEG too and she also got her hair washed from Auntie. She was feeling ok. We sat her up in the chair for a good 20 minutes, until she started crying from pain. I figured tummy, but she was clutching her chest and the heart monitor was reading 160+ bpm. I grabbed her nurse and she is trying to help. she grabs other nurses, while i'm tryingto settle her down, her chest was hurting so badly and her heart rate was only going up. And then they ripped off her gown and her chest was sinking in really hard with every breath. I look up and all of a sudden, Quinn's room is filled with like... everyone on staff. Apparently, they called a code. PICU doc is in there talking to retard resident, who is saying that she has been stable the entire stay so far. whne her heart rate wasn't stabalizing and she continued with respiratory distress, they decided to take her into the PICU. It was scary!

So she gets in bed and seems to be doing well, they were just planning on watching her for the time. at first, they thought she was just having a hard time with the pain and thta it was just too early to sit her up and she over-exerted herself. EEG and EKG were normal. The original plan was just to keep her in PICU over night to monitor and move her back to general peds tomorrow. Met up with retard resident in the hall and he said he thought she was fine, just over-exerted herself. But then, Quinn's blood pressure started to plummit to dangerous ranges, she continued to be tachycardic and she continued respiratory distress and she was not very responsive. First round of blood showed her to be severely hypoglycemic (low blood sugar). By the time all labs were in, Q was spiking fever, BP was really low and she was still tachy. Just in and out of conciousness. She was then found to be acidotic. I tell you, for the past 5 hours or so, it's been a flurry of doctors and everything running in there. They decided to do a PICC line because she was running out of access. For a child that fights every IV and blood draw, she barely put up any fight at all, even when she was getting cathed. WE are still waiting to see what cultures could be growing, but right now, she is still very sick. The only good thing is that she is still breathing on her own, though she is retracting quite a bit and we are having to switch her position a lot. Her sats have remained very good throughout this entire time though on 1 L of o2.

Please pray that she is ok. I'm really worried about her. Everything that I feared about this surgery happened and now i'm feeling like a terrible mommy for putting her through this! I'm grateful for where she is right now because everything is getting done so fast and the nurses and doctors seem more caring and competent.

I need to get some sleep now. I might not be able to update much since my phone can't type on blogspot for some reason.