In Hospital

Again. currently battling sugar issues now. Suppose to have an endo consult tomorrow and likely some testing.

Q has been having major lows and major highs. I was unable to keep her very stable at home. her tummy was just humongous so one night i decided to discontinue her feeds and put her on just Pedialyte and by morning, she was in a hypoglycemic crisis. She was pale, cool, clammy, frantic and very shaky. It was quite scary (but also, nothing new). I gave her some juice and grapes and less than an hour later, her sugar was super high. It was decided to take her in and that's what I did. Despite the electrolyte drip and the feeds still going into her, she was found to be spilling ketones in her urine and still dehydrated (even though she got tons of pedialyte that night). Well, because Quinn is Quinn.. and this is just the way things are. she's been pretty stable since we arrived. She has had some slight abnormalities with her blood sugars, but nothing drastic like what we had been seeing for the past week. At the same time, she has been having minimal output from her G drainage and stomach seems to be working again. thankfully, they still want to do an endo consult and look into some possibilities for her drastic glucose changes. (thank God glucometer records readings!!!) And her GI doc is on the team tomorrow so I get to talk with him and let him know all the good stuff that's been going on. I REALLY hope it's NOT diabetes and i really don't think it is. I just want a plan. WTF am I suppose to do when her stomach is not moving things, she needs hydration and she needs sugars? I'm NOT taking her in every week for fluids. there's gotta be something more I can do for her that doesn't involve a central line. These episodes are brief, maybea couple days at most, but they are also frequent, so obviously, we just need a good solid plan. I hope I am able to convey that message tomorrow.