I know Quinn was just recently diagnosed, and seriously, everyone I know it the mito community basically told me that she had it and would be very surprised if she was never officially diagnosed. But somehow, I just never fully accepted this. I followed a lot of Mito warriors and cried many tears for them and their families, but something inside me was denying that I was actually walking their journey too. Now that we are official, I somehow feel that much closer to those fighting this disease every day.
Some families who need our prayers:
I'm so sad to say that Maggie has earned her wings. She was such a sweet and beautiful little girl! her family needs all the prayers they can get to help them through this very difficult time.
Samantha has been fighting in the PICU for two, almost 3 weeks now. She just had surgery to place a trach. Please pray for healing for her and that she can have no further complications during the rest of her hospital stay. Her parents are very eager to take her home again, but she still has a long recovery. She needs our prayers.
Sweet Eithene is always in our prayers too. She has been in the hospital for about an entire year now and is constantly suffering infections and now heart issues. Please keep the family in your prayers.
Mito just plain sucks.
2 comments:
Sarah, welcome to the club.....sorry, no great coupons or membership card, but there are wonderful friendships to be made, more prayer warriors needed, and always lots of amazing parents to lean on.
Praying for you as you embrace the diagnosis and move forward.
Love,
Clara-Leigh
Sarah, while our 5p- diagnosis is nothing like getting a mito diagnosis, I understand how hearing those words can be such a blow. It's like being punched in the stomach. You can't deny it any longer. You are forced to face it head on.
And I know you are. You're an amazing mother and Quinn is so lucky to have you. Know that you are both in my thoughts and prayers.
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