Back in the hospital

Yeah, after our appointment, we basically came home, spent the night and turned around the next morning and took Quinn to Loma Linda. We have been having a problem for the past week (now week and a half) with her stomach pain. It hurts her so bad. She was screaming while pushing meds, having scream fits at night, having scream fits during the day... tummy pain was just bad and had been going on long enough for me to not be ok with. Plus shew as pushing tons of green bile and her home nurse said that she had very little bowel sounds where her J portion was. Plus, it just kept swelling up (like it normally does) but with the pain and everything else, I just felt she needed some more help. So I called up her GI doc and he recommended we go to the ER. We did and her X ray showed some issue in her small intestine, and she had a big ball of stool blocking the exit plus she has very minimal, almost non-existent bowel sounds in her small intestine, right where she has been in serious pain.

So they admitted her on Friday and started a clean out with golytely, which at first failed miserably. She was started on TPN too. Through the night and this morning the pain was unbearable. she was just screaming, the golytely was just sitting there and not doing anything for her except accumulating. She was hard and distended and in tons of pain so we had to cut it off for a few hours. we restarted it later today at a much, much slower rate and she's starting to poop finally and the pain isn't so bad. WHEW! But she doesn't look very happy.

We are watching her closely because the pain she is in right now is very similar to her pain in November right after the surgery she had... though this probably isn't teh same situation, it still has me on edge. She also started up with a significant cough and green boogies today, but no fevers so htat's a good thing. One thing that has been just awesome is her o2 sats have been in the 100% off oxygen! We have been talking about weaning her from her o2. she's even been doing much better in school during the times she is able to come off for activities.

so, we have had a night nurse for the past two nights, it was one of the nurses who cared for Quinn in November, when she was really sick. She was the nurse on the night that Quinn was Hallucinating pretty bad. It was funny cuz she was talking to me about that hospital stay (seriously, all teh normal nurses know Quinn because of that stay, they usually NEVER have a patient crash so fast and so hard like Quinn did, that all the nurses involved that day, i'm sure she left a chunk of an impression) So anyway, she was telling me that she remembers caring for her and she was talking to other nurses about how she just didn't think she was so well that time in November. Like, she could tell that Quinn was very, very sick, much sicker than the stupid resident who was taking care of her made her out to be. (seriously, he made me feel like a looney bin.) Anyway, she said when she came on one day to check on Quinn's progress and she heard about how Quinn got moved to the ICU, she said that she knew it was going to happen. Quinn should have never been moved to the general peds floor, she should have been in ICU or the step down unit after that surgery, or even a few hours after that surgery when it was obvious that she wasn't recovering well. And she was telling me about how that docling was blaming her hallucinations on the pain meds, even though quinn was still in a GREAT DEAL of pain and about how there's just no way she could have gotten taht sick because of anxiety (like what the resident was saying). We all think Quinn taught taht resident a valuable lesson. So, ew talked a lot about that night and I told her what had happened and what I thought of the piece of work docling. She said that she would have NEVER knew that Quinn could look so much better, even though we know she's in pain and in hosptial, that's more like the kids on that floor are suppose to look anyway. She commented on how much better she looks. It's nice that we have had her over and over again because she is very aware of Quinn's baseline and how she is when things aren't going so well. I hope they don't switch her around again.

so anyway, we are just waiting on tomorrow to come so we can discuss a more thorough plan. her normal GI doc will be on service (how lucky is that)!