Quinn is In the Hospital

After Quinn got her J-tube on Wednesday, things have kind of gone downhill from there. She came out of General Anesthesia just fine and we were sent home hours after the procedure. I tried to hook her up to her J-feeds that same night, but she was in a lot of pain. The pain continued throughout the night, i was giving her tylenol round the clock and she was just miserable and crying and crying. i thought for sure something couldnt' be right. So the next day, we took her back in to the doctor and he checked her tube placement, which seemed to be alright. He did say that she had  ALOT of air throughout her system and that she simply needed to fart and poop and she would be ok. He prescribed her tylenol codiene and glycerine to help her and instructed us to give her laxatives. So, we did that. fast forward to Friday and she still had little relief. Even the tylenol Codiene was hardly helpful.

Last night, my dad was watching her for me. I went out with a bunch of my friends. Good thing I was the DD! My dad called me at 5am and said that I needed to meet him at the ER because Quinn was not doing well at all. He said the she was doubled over in severe pain from her stomach, that it was rock hard and that she was not breathing very well at all.

I met him at the ER and Quinn was in respiratory distress!!! It was so scary! Her belly was swollen (though not has bloated as we have previously seen) But it was rock hard and so painful. She was wretching and gagging like crazy. She was in bad shape. The ER wasted no time and she was taken back immediately and started on a ton of steroids, zofran, oxygen and lines were immediately put in. She was put on a cool mist for a few hours and we were able to finally get her breathing under control. Thankfully it's not in her lungs, but all airways. I'm not sure why her airways are causing her problems, but the staff said it was caused from her intubation on Wednesday.

They took some more X-rays and confirmed that she has a lot of air throughout her ENTIRE GI system and that she had some stool in her large intestine. They called the childrens hospital and they transferred her and admitted her. They did a CT scan of her abdomen. The GI doc came to talk to me and said that Quinn's motility is really bad right now. She's hardly moving anything through. It's all just stuck in there. They connected her tube to a suction for a few hours and she has been NPO for almost 24 hours now. She's lost about 1-2 pounds. Thankfully, after some rest, meds, and oxygen, she is doing much better and is completely stable. They were actually talking of moving her to the ICU, but she's doing better now so she's on the main floor. WHEW!

The doc says that the new J-tube doesn't appear to be the problem. It seems to be in place and nothing seems to be perforated. We think this problem was probably inevitable, unfortunately. She has a small fever that comes and goes on its own and her blood works shows increased white blood cell count. The doc says her body is working really hard right now.

for now, as far as i know, the plan is to continue the IV antibiotics for the next couple days, get rid of the infection and try and get her to poop. Once we accomplish that, we can slowly start her J-feeds back up to see if this problem crops up again. The doc said she will likely put her on TPN depending on how the next couple days go and if she can sustain a little bit of weight.

All this just came on so fast! I didn't expect it! She was SO sick Saturday morning. she's doing much better now, but she doesn't even want to get out of bed. She is guarding the crap out of her stomach it's so sore! she really is such a trooper though!

Now I need to get to bed. I've been up for almost 36 hours now i think... I duno maybe only 24, i lost count. I'll update As I can.