Hey guys. Just a small update. Quinn is doing much better. They gave her this stuff called Golytley to help her poop and clean her system out. It's been pumped through her stomach all day today and she did fine with it. They did another KUB to check her bowels again and we were suppose to be able to start up tube feedings if her bowels were better. And of course, she still has to be NPO because now the J-tube is dislodged. So she is suppose to go in to have another procedure tomorrow under General Anesthesia... AGAIN to have it replaced. THEN hopefully we can get her going again. i'm kinda scared because if general slows the motility, then well, we are going to restart this cycle? Not cool. She's been without any kind of food for 4 days now. Poor kiddo. But surprisingly, she's ok with it. i'm concerned though because with her pooping like that and no food on her, she's loosing weight quickly. We gotta get this kiddo eating again.
So the information that I was told today was that Quinn had her procedure for her J-tube, everything went well, but it slowed her motility... a series of unfortunate events... for a child that already has slow motility, this could be bad, but generally it's ok. but THEN she got an infection on top of it, which also messes up the gut. So she was just bad luck all around. This caused her to get a bowel obstruction, which caused her stomach to become distended which squished her lungs and caused her to go into respiratory distress. That's the story. Hopefully, we won't get a repeat of this tomorrow.



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