First off, we are back from my brother's wedding and it was BEAUTIFUL! It was like the movies! I'm so happy for my brother. Quinn did very well there. We had some oxygen days, but she was so happy to see Uncle Dan, Aunt Tonya, cousin matt matt, aunt Brittney and Uncle Kris! It was great being around family, for the most part. So much family in a close environment can be taxing (1 shower to share with like 12 ppl), but it was still a great thing. I miss my little brother. I'll get some pictures up as soon as everyone gets back home and settled.
Unfortunately, we came home and pretty quickly it became evident that Quinn's j-tube was not where it should be. So, we went to the hospital to check on it today and, sure enough, it has migrated AGAIN back into her stomach. So frustrating! After only 2 weeks since the last misplaced tube. So, instead of going the whole GA route and KNOWING it will fall back out again, we decided to revert back to the regular g-tube. Such a sad thing to have to do too because she was sooo spunky when the j tube actually WAS in place. We are having to go back on oxygen 24/7 and back to continuous g-tube feedings. Quinn was given some new prescriptions to help with the consequences of an extremely slow GI system and the GI doc is referring her to surgery consultation for a separate j-tube. We are sincerely hoping that she can handle the g-tube feeds until we find out what is the very best thing to do for her. at this point in time, it's looking like her very best option is surgery. I'm so upset. I feel like these last two months have been nothing but a road of ups and downs. And now it comes down to surgery. If she doesn't tolerate this, Quinn will have to be admitted to the hospital until she gets her surgery done.
Finally, on a good note, Quinn's belly xray looked much better than it has in many, many months!
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