A Decision To Make

Well. It has been an interesting couple of days to say the least. I first realized that the tube was probably out of place the night of the 31st i do believe when I dropped Q's feeding rate down to 35 ml/ hr and her stomach was still acting up. I checked the residuals in her stomach and sure enough, she had an entire 60 cc syringe full of formula in her stomach, probably more. So, I put a call in to the doc on Monday and he said that he wanted us to come into the ER to get her a tube check and get admitted. So, off to ER we went, and of course, mommy was right the tube was in her stomach. and we were admitted to the hospital. The very next morning, they wanted to just try and do a conscious replacement. I agreed to it thinking that if we could at least avoid another general anesthesia, we could go home sooner. Well, that was just torture. They did TRY it and it was pretty painful for her and traumatic. Due to her anatomy, the procedure took a long time, so she was very upset. We THOUGHT it was in and so we went to get the tube check and, well, it was unsuccessful. So later that afternoon, Quinn got put under again and she had the procedure done. The doc said that she will need to continue to be put under for future placement because the tube is just too hard to get in without going in with a camera through the esophagus. .... sigh...

so, according to the Xrays. Quinn's stomach is still airy all throughout and still has some impacted stool. The doc said that Quinn's motility is definitely very slow. Her motility is just bad, but at least it's moving. Hopefully it will get better.

We wanted to start up tube feeds shortly after, but we had to stall and Q had to spend another night due to the nausea from the anesthesia. She was not able to keep down 2 sips of apple juice and so we had to give all her meds through IV and start her on some IV Zofran for the nausea, stalled her feeds until way later, and hoped that the fever and nausea was just from the anesthesia.  She had some serious diarrhea and we were up all night dealing with wretching and that. It was just a rougher recovery for her than normal. But I was hopeful that it was all we were dealing with and thankfully, it was. By morning, the Zofran had worn off and she was able to eat breakfast and keep it down without wretching. And so we were discharged! yay!

Unfortunately, this is a temporary fix. This is the second time in less than two months that Quinn's J-tube has coiled back into her stomach. She hasn't even had it for 2 months. The doc doesn't anticipate it lasting much longer. We were told to think about some other options. Both the GI docs recommended possibly doing a separate J-tube. This is a surgery and a completely separate tube. this tube would go directly into her small intestine and it would look just like her g-tube, except in a different location and she would still have the g-tube. I asked them both if this would be their recommendation and they said that since she is obviously doing better with the J-tube, this would probably be a good idea for her. Still concerns me that we are having to do more stuff with her stomach. My biggest concern would be if this messing with her gut more would cause even more problems. We can't continue to put her under every couple weeks for something simple such as this. She is at risk for breathing problems and infection each time she is in the hospital. and honestly, i can't stand being there. It's hard to sleep,

 This is our puppy we got a couple weeks ago. She's so sweet. A Chueenie! (chiuaua-weener dog mix)


So, next week we go on vacation for my brother's wedding. Thankfully all this happened before our trip! Hopefully, we don't have any emergencies when we are there. We will be gone for a week in Washington. Q is the flower girl so i will take pix!