Well, I hate gtube feedings. I hate what they do to her. She is not doing as well as she was on jtube feedings and that is evident. WHY... i have no idea, but somehow, just moving food out of her stomach and into her intestines causes her to get very exhausted. She is pale again, has dark circles under her eyes. She is weaker than she was when her jtube was in the proper place. She is sleeping 16 hours a day, requiring 24hr oxygen. Stomach bloating... luckily, we have been able to keep this to a minimum. We got a new formula for her that has a higher calorie, so we are able to decrease her rate to 35ml/hr. Even that causes a bloat, but it's not so bad. Interesting... she is BEGGING for food AGAIN! I don't get it. with her jtube feedings, she rarely begged for food, but now, she is back to thinking that she is starving. We really think that she just doesn't understand the difference between stomach pain and hunger. She's just been extremely irritable again. it's evident, this jtube surgery might be just what she needs. We heard the paperwork went through to surgery, but we haven't gotten a consultation date yet. Hopefully, this won't take too long and hopefully she will do ok until then, but right now, it breaks my heart to see how floppy she is and downright not feeling well.

We got a magazine that came in the mail today. It's a costume magazine for halloween. I asked her to pick out some costumes she would like to be for halloween this year. I fully expected her to pick ballerinas or fairies.

She turns the page and is like... ooo! i wanna be a cowboy! Pointing to the cowboy and NOT the cowgirl.

So, i said ok, keep looking. THEN, she says she wants to be a FIREFIGHTER!

So, i tell her to keep looking and maybe she will find a beautiful princess or a ballerina. She skims over the princesses and ballerinas. Then she turns the page and keeps looking and says, I wanna be SPIDERMAN!

I just laugh and laugh. Since she was very young, Quinn has favored boys toys over girls stuff. She does still enjoy her littlest petshops and barbies and babies, but not nearly as much as trucks, cars and blocks. So she gets along well with her two cousins lol!

Here are a few pictures from our trip to Washington. This is her with her two cousins, Matt Matt and AJ.

The above picture is my brother's motorcycle. Nice bike, eh?

And lastly, we had a playdate the day before yesterday with a fellow Mito Mom and her two children who live in our area! Brayden and Bryna were ssssoooo awesome! They came to Quinn's bday party too when she turned four. Here are some pictures. Brayden was a little shy. I think the heat was making him kinda tired. We played mostly indoors, but i didn't think about taking pictures until after they were all worn out. Silly me!

Bryna takes such good pictures! She's such a happy little girl.

Oh and one more. This is a picture that Quinn drew of her "family" It's me, Joe and her. (She always draws me with super long legs)

Thanks for reading!