I dunno what is going on with Quinn right now, but something is wonky. She woke up this morning just crying and crying for me and I went in there and she was rolling around on the ground saying that her armpits just hurt her really bad. So i'm trying to find a reason for her armpits to hurt her and i can't find it. She was crying about it for like 10 minutes. She was like "mommy! I think i'm in pain!"... poor kid! I think there are lymphnodes under there, but they weren't swollen at all. She is not really feverish, but her cheeks are red. So i gave her some juice and told her to just lay down in her bed for a little and take a rest and maybe the pain will go away. So she did just that and then I hear her starting to choke, so i come in there to figure out what is going on and she is trying to throw up and I asked her if she was ok after it was all over and she was like, yeah, i just choked really bad. So i'm trying to hunt down her pulse ox, in which we can't find since our Washington trip to find out if her oxygen saturations are ok... with her armpits hurting her, it could be her chest, and that worries me for pneumonia, but I can't find the darned pulse ox so i just turned her o2 up a liter to 2.5 liters. She has been retching all morning still, even while i'm typing this.So today, i'm just going to watch her very closely.
All the other classmates started preschool this week, but Quinn is not in there. the nurses at the main office won't call me or the preschool back to schedule a time to meet with everyone about Quinnn's "condition"... I'm hoping that this year, Quinn will be able to stay in school iwthout me. this will give me a much needed break. But nothing will happen of those lazy nurses won't return a phone call! this is not the first time it has happened. Last year, when Quinn had seizures in class, they asked that I take her out of school to give her a little break for about a week or two. And so i did, but they didn't return any calls and we couldn't get an approval to go back to school until almost 2 months later! This is just uncalled for! so, I can't really do anything until the nurses get back in touch with the school and then we have to have a meeting and then some more paperwork and then she can hopfully join her friends in the classroom and learn and socialize with all the rest of them.
Tomorrow we have the nurse coming out to review her case. Quinn is on a program that pays for care, fortunately, I am the one that cares for her. The nurse comes out annually and so she will be here tomorrow and I am suppose to report changes in her care and we are suppose to calculate the hours of her care again to determine if her hours can be lowered or increased. I'm gonna shampoo the carpets. i'm sure it means nothing to her to have some stains on my carpets, but it annoys me anyway. We live in the desert, so if any thing wet, such as medication or water comes into contact with the carpet, it leaves a dirt stain and my carpets are a cream color, so it looks much worse than it really is. but i wanna take care of that anyway.
I dunno why, but i love the above picture. something about her pretending to watch TV with her stuffies it is just so cute!




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